A growing global effort is underway to better understand the lived experiences of people affected by Primary Ciliary Dyskinesia (PCD), as international organisations join forces to engage directly with the patient community through targeted surveys.

Australia is playing a leading role in advancing care for people living with Primary Ciliary Dyskinesia (PCD) through the groundbreaking REPEAT Trial—an innovative research study led by Anne Chang. Catherine Kruljac, President and Founder of PCD Australia, was privileged to serve on the trial’s committee, contributing valuable patient advocacy insight and supporting the representation of the PCD community throughout the study.

We are proud to share that Lung Foundation Australia has announced the 2026 Lung Health Legends

PCD Australia was proud to be part of an inspiring program filled with learning, collaboration, and advocacy. It was a true honour for our President, Catherine Kruljac to co-chair the first-ever dedicated PCD track alongside Dr. Claire Hogg and Phil Robinson.

For many people living with Primary Ciliary Dyskinesia (PCD), treatment is not only about managing acute infections. It is also about reducing the long-term cycle of mucus retention, inflammation, and progressive lung damage that can occur when the airways cannot clear properly.

Early diagnosis of Primary Ciliary Dyskinesia (PCD) remains one of the biggest challenges for families and clinicians. Because PCD is a rare genetic condition with symptoms that overlap with many other respiratory illnesses, children can often go years without an accurate diagnosis.

Catherine Kruljac, President of PCD Australia, attended the APAA Summit in Canberra, today, March 3rd 2026, joining patient advocacy groups, healthcare leaders, and policymakers from across the country.

Stephanie March And Joel Taggart Are Urging Councils Across South Australia To Join The Global Chain Of Lights Campaign On 28 February 2026

Primary Ciliary Dyskinesia (PCD) is a rare genetic condition that affects the function of tiny hair-like structures called cilia, which play a critical role in the respiratory system, sinuses, and reproductive organs.

PCD Australia recently circulated a Listening Survey to gain a greater understanding about the PCD community’s needs and what they want PCD Australia to focus on.