Assets
Resources
Understanding PCD
What is PCD?
A simple overview of Primary Ciliary Dyskinesia (PCD), how it affects the body, common symptoms, and why airway clearance matters.
Diagnosis & Testing
Learn how PCD is diagnosed in Australia, what tests are used, what to expect, and where specialist testing centres are located.
Coming to Terms with a Diagnosis
Support for families navigating the early days—common emotions, practical steps, questions to ask, and where to find help.
PCD Across a Lifetime
PCD Before Birth: Scans & Genetics
Information on organ-position findings during pregnancy, autosomal recessive inheritance, and when genetic counselling may help.
Birth to School Years
What to expect in early childhood—special care needs, hospital admissions, vaccines, school planning, hearing support, and absences.
Teens & Transition to Adult Care
Guidance for growing independence, transition planning, managing school demands, and why avoiding smoking/vaping is critical.
Adulthood: Relationships, Work & Family
Practical advice for adult life with PCD—relationships, employment, stress, travel planning, and fertility considerations.
Health, Home & Treatment
Common Issues & Tests
A guide to ENT issues, reflux, lung function testing, exercise testing, and imaging—what each test is and why it’s done.
Managing PCD at Home & Travel
Home IV antibiotics, infection control, GP coordination, healthy lifestyle basics, and travel insurance/fitness-to-fly tips.
Physiotherapy & Airway Clearance
Core airway clearance methods including ACBT, postural drainage, autogenic drainage, devices (PEP/oscillatory PEP), and treatment order.