PCD in the teen years: independence and transition
Supporting young people to manage treatments, school, and the move to adult care.
Building independence (12-15+ years)
• Start involving teens in appointments and treatment decisions early.
• Encourage partial solo time in clinic consultations to build confidence.
• Create a simple system for medication, physio and symptom tracking.
Transition to adult services
• Ask your paediatric team about the transition timeline and adult clinic details.
• A written transition summary is usually prepared for the adult team; the young person can contribute
what matters to them.
• Discuss practical questions: who manages port flushing, home IV planning, and emergency plans.
School and exams
• Tell the school and Department of Education about PCD so adjustments can be considered for exams and attendance.
• Plan ahead for expected absences (e.g., IV courses) and ask about hospital school options if available.
Smoking and vaping
Smoking and vaping can significantly worsen lung damage risk in PCD because mucus clearance is delayed and irritants can stay in the lungs longer.
• Strongly recommended: do not smoke or vape, and avoid second-hand exposure.
• Household members should also avoid smoking/vaping to reduce exposure.
This fact sheet provides general information only and is not medical advice. Always follow guidance from your respiratory/ENT/physiotherapy team.