Managing PCD at home (and when travelling)
Home IV antibiotics, infection control, GP partnership, healthy lifestyle, and travel planning.
Home administration of IV antibiotics
• If suitable, the first dose is always given in hospital, then treatment may continue at home.
• Plans depend on clinical status, support at home, location, and preferences.
• Antibiotic timing can sometimes be adjusted around work/school alongside rest, nutrition and physiotherapy.
Infection control essentials
• Clean and sterilise nebuliser equipment as per manufacturer instructions.
• Do not share respiratory equipment (including within families).
• Cover coughs with elbow/tissue, dispose tissues promptly, and wash hands/surfaces regularly.
• Avoid sharing drink bottles and cups.
Partnering with your GP
• Keep your GP informed of your diagnosis, medication list and care plan.
• Carry a copy of your specialist letter; your GP can contact your PCD team for advice if needed.
Healthy lifestyle basics
• Hydration keeps mucus thinner and easier to clear (water is best).
• Eat a varied diet with adequate protein to support recovery and muscle strength.
• Exercise is strongly encouraged for lung health (children often benefit from trampoline play).
Travel and holidays
• Arrange travel insurance early and disclose PCD fully (it may be listed as Kartagener’s syndrome).
• Pack an extra week of medication and keep some in carry-on luggage.
• Carry a recent clinic letter and confirm your specialist is happy you’re fit to travel.
Note: Fitness-to-fly testing may be recommended if you have a history of oxygen needs during infections, resting oxygen
saturation <94%, or FEV1 <50% predicted.
This fact sheet provides general information only and is not medical advice. Always follow guidance from your respiratory/ENT/physiotherapy team.